Most autism research focuses on deficits. Research on autistic burnout looks at the real-life loss of functioning and the toll of having to constantly mask. (This is just one research study on autistic burnout from 2020. I will be posting more recent studies with more data in the future.)
The Big Picture: Autistic burnout can be described as pervasive, long-term exhaustion and loss of function. It’s more of a deep, quiet stalling of the whole system. While often confused with other conditions, the research confirms it is unique from clinical depression or standard occupational burnout.
Study Type: Community-based participatory research
Participants: 19 interviewees
Key Findings:
- Barriers: Barriers to support include a lack of empathy from neurotypical people, difficulties in accessing adequate supports, and an inability to reduce the load before it leads to total exhaustion.
- Impact: There can be a reduced capacity for independent living, negative effects on physical and mental health, and suicidal ideation.
- The Environment: Genuine recovery and prevention aren’t easy and involve seeking acceptance and social support, a temporary or permanent reduction in external demands, and unmasking.
Access Status: Free / Open Access
Direct Link: https://pubmed.ncbi.nlm.nih.gov/32851204/
Adult Autism Insights 